Bella has had some problems since birth. She screams ALL the time. She doesn't sleep soundly and is routinely up until 2 or 3am. We took her to the pediatrician when I just couldn't take it any longer with out losing my mind. She was diagnosed with possible acid reflux. They put her on Zantac twice a day. It did NOTHING for her. So a little over a week later we went back to the pediatrician. This time they put her on Prevacid and again it did nothing for her. In fact she stopped sleeping. She was awake for 22 out of 24 hour in a day. We stopped giving her that med and went back to the Zantac trying to bide our time until January 3rd when we had an appointment with a pediatric GI doctor.
January 3rd comes around and we head out to the specialist. She reviews Bella's symptoms telling us it sounds just like her second child. She said it sounded like reflux to her but she wanted to run and upper GI test to be sure they were not missing anything. So we scheduled the upper GI for Friday January 7th (yesterday.) The GI doctor put Bella on a new medicine for acid and told us to make a follow up appointment in 3 weeks. So January 28th we are headed back to see her again.
January 7th comes around and we are again on the way to a medical appointment. This one had a catch though. Bella was not allowed to eat for 4 hours before the appointment, which if you know Bella she likes to eat every 3 hours! They wanted her hungry because she had to drink some very nasty white stuff that is reflective for the test. So she stays up until 2:30am and only eats 2 ounces at that time. 6:30am rolls around and she is mad as a hornet because she is hungry and wants to eat. We hurried and got dressed, me while Chelo was holding her and Chelo while I was holding her. Then we jumped in the car hoping the car ride would lull her to sleep until her appointment at 8:30am. IT WORKED! She fell asleep in the car and we arrived at the hospital at 7:53am. Thankful that they were running ahead of schedule and called us back almost right away. They proceeded to strap Bella down so they could rotate her to get the films they needed. This included strapping her arms up by her head. She was NOT a happy baby. She was a good baby and ate the nasty white stuff fairly easily so they got the test completed in about 10 minutes and we were able to feed her a real bottle. The lady running the test said everything looked good to her but the doctor would have the results in 3-4 days and would call. Imagine my surprise when they called the same afternoon.
It was a phone call I will never forget. They said that all of her anatomy was formed correctly so that was a good thing. They also said that she showed some minor reflux but that is normal so they were not concerned with that either. Then she said something I will never forget. "We found a vessel in her heart that is in the wrong place." WHAT? She explained to me that they are sending her to a pediatric cardiologist because she has a vessel in her heart that should come out from the right side but instead it comes out from the left side and wraps around her heart where it eventually ends up in the right place. Though it is pressing slightly on her esophagus and may be causing some of her problems. She tried to tell me not to worry that they usually just do an untrasound of her heart and then watch the condition. That did not make me feel any better. So now we are headed to another specialist on February 1st.
It is weighing very heavy on my heart that something could be wrong with Bella. I am left to sit and wonder why, even though I know we are not supposed to ask why. It is always said that God does not give more than we can handle, but He is giving me credit for being far stronger than I feel right now.
Saturday, January 8, 2011
Posted by Mitch & Brandy Ramos at 12:22 AM